Showing posts with label Alzheimer's. Show all posts
Showing posts with label Alzheimer's. Show all posts

Wednesday, 13 September 2017

Choices



A huge part of adulthood and one of the key things we look forward to as children is the chance to make our own choices. One of the first words we say is “No!” and I learned early on as a mother that if you wanted your toddler to wear pants don’t ask them to put on pants, ask them if they want to wear the green ones or the blue ones. 

Mr 11 at age 1, the most decisive kid on the planet.
The small decisions we make as kids prepare us for the more important ones we have to make as we grow older. Choice gives us a sense of control in a crazy world. What teenager hasn’t gotten frustrated with their parents for saying ‘no’ when they are making what they believe is a good choice? 

The word “No” is usually met by all the traditional stages of grief from denial to bargaining while the final acceptance stage may look more like your frustrated teenager daughter screaming “UGH You are the WORST mother in the world!” And the sound of a door slamming as she stomps up the corridor to her bedroom.

You see, to the teenage mind not yet familiar with the intricacies of adulting, the word ‘no’ is a simple choice, a choice to let your child be happy or have “the worst day in their entire life OMG”. Where as to the parent “No” is a layered answer based of carefully weighed up pro’s and con’s factoring in other family members, safety, time frame, logistics and potential future consequences. 

Okay, I admit occasionally parents do say no without a really good ‘genuine’ reason – in my case this is often related to laziness. A “no” to “Can I go to Billy’s house for a sleep over?” is possibly because Billy lives 40 minutes away and I don’t feel like getting dressed and driving rather than because I am concerned that Billy’s parents are secretly smoking crack.  

But sometimes there are genuine concerns for safety, take my son Mr 13, who is more honest than most teenagers because well frankly he has never really mastered the art of lying. I am particularly thankful for that given the company he has a habit of keeping. He will tell me how his best friend ever is taking drugs and getting beaten by his alcoholic father and then in the next breath he will ask if he can go over there for a sleep over tomorrow. Um… yeah, no.  

In situations like this I have to be ultra-careful to use an unrelated excuse for why he can’t stay there this weekend and then wait a few days to have the appropriate “safety” talk, this way he doesn’t connect that the fact he was honest with me has actually caused the “no”.

Mr 11 and Mr 15 on the other hand are far more versed in the subject of lying or at the very least omitting facts they feel might influence my decisions. In their cases, there is far more detective work involved but they are also more self-confident than Mr 13 and less likely to bow to peer pressure. Mr 11 has been very confident about his own decision making since birth. The best way of finding out if they are up to no good is quizzing Mr 13 about it!

So sometimes, okay most of the time, being a mother makes me feel like a total hypocrite. I made a lot of bad choices as a teenager – a bad teenage choice is how I became a mother in the first place! I’m just bloody lucky that things have turned out alright for me on the whole but I still find myself making bad choices, particularly with my health. 

Having mental health issues and being suicidal most of my life meant that things like going to the dentist or having a pap smear were simply not done because, well they are unpleasant and frankly you aren’t all that concerned about long term consequences when you feel the chances are that you won’t be around to suffer them anyway.

Even at the best of times depression can turn choices like whether to wear the red jumper or the blue one feel like life and death decisions that we simply haven’t got the authority to make. My parents both have serious issues with decision making, Mum always has and Dads Alzheimer’s has affected his skills in that department, so something as simple as choosing where to go for coffee when I’m also depressed can take forever. 

I also have a tendency to decide when to listen to my doctors based on my wants at the time, if medication is suggested when I am depressed then I’m all for it because I want to feel better, but if its suggested when I am euphorically manic and need to come down then I’m going to take a lot more convincing.

When I’m hypomanic and teetering on the edges of mania is probably when my decision skills are at their poorest, back to the teenage ‘have fun now and to hell with the consequences’ mentality I am more likely to take drugs (other than those prescribed), spend ridiculous amounts of money, stay up all night for days, swear inappropriately, act impulsively, drive dangerously, get into arguments, ditch my self -care routines and generally misbehave. 

Not helpful 8 ball, not helpful!
I caught up with an old friend the other day, she has been diagnosed with Bipolar in the last 12 months but in hindsight has had it for decades, we were discussing that pivotal point in hypomania when you still have the insight to know you need intervention even though you are having fun and how hard it can be to make that right decision to go to the doctor. 

Ultimately life is full of decisions, sometimes we are going to make the wrong ones but recognizing and learning from them is what will help us grow, and if all else fails I do have a magic 8 ball.

Do you have trouble with decisions?
  

Wednesday, 26 July 2017

Holiday-Lag


I am home after five days in Brisbane, the sunshine state certainly put on a good show for us weather wise living up to the old saying “Queensland is beautiful one day, perfect the next!”


Bridge to the city
So my eldest son (Mr 14), my Dad and I flew up last Thursday to visit my brother, his fiancĂ© and their exceptionally cute two year old son for five days. It was Mr 14's first plane trip and he loved it! No travel sickness for anyone, I think I have finally found a travel pill that works and we also had an incredibly smooth flight which helps. 

 My brother is lucky enough to live within walking distance of pituresque Southbank and the bustling Brisbane City Centre, I had never really spent time in Brisbane before and was surprised at just how beautiful and green it was, there are parklands, play grounds and manicured public gardens everywhere and of course it's warm so all the trees have leaves in winter which was a pleasant change from my part of the country!  



Roma Street Gardens
So my holiday was fantastic but today I have been hit with wave of unexpected depression. Holiday-lag perhaps. I think that there are many contributing factors, I returned home to find out that we had completely run out of water and the water truck man I had organized didn't turn up then when I rang him he said he couldn't come out until tomorrow and he had increased his price by $80. We told him not to worry about it and now we have to figure something else out so that we can shower again as it doesn't look like it's going to rain any time soon.

View from the Mt Coot-tha Lookout
I am really tired, I have actually slept more in the last week than I usually do but for some reason I am exhausted. My routine is out of whack, I haven't been for a run in a week which is stressing me out, I think spending that time with my brother's family made me realize how much I miss seeing them and overwhelmingly I am really noticing the slow decline in Dad. 

My regular readers would know that my Dad was diagnosed with Alzheimer’s earlier this year, it's sad to see Dad's memories fading, watching him have fun with my young nephew and knowing that he soon won't remember it so it was really special to be able to get lots of photographs and some video footage of the trip that we can show him later on.

One evening after Dad turned in for the night, my brother, sister in law and I watched a 4 corners episode about Alzheimer's and Dementia. It followed the stories of a few different people as their condition progressed and it was sobering to say the least, there is such a long road to go down, it's scary and so, so sad.


When we flew back to Canberra Mr14 and I spent the night at Dad's place, Mum is still away in Canada with her friend and he is leaving for his bucket list trip to Darwin today that Mum booked for him seemingly out of some sort of miss-placed guilt about going overseas without him. While his condition isn't too bad yet and the new medication he is on is making a difference, I am quite worried about him embarking on this trip alone. 
I really want him to have the experience - he's been talking about going since I was about 5yrs old, but I wish Mum was going with him and I am annoyed at her for being so unconcerned about it all.

 He is mostly fine as long as he sticks to his routine and everything goes exactly as he expects it to like at home, but he gets quite muddled & distressed when something changes and frankly he has been back home from Brisbane 24 hours and was already tired, he then he had to leave at 4.30am get a taxi to the airport catch a plane to Sydney, then transfer all his baggage and catch a new plane in a different area to Darwin and then find the tour group. Coming home is even more complicated- its a lot of steps for him at the best of times and I really hope there are no gate changes or delays!

Dodgy Selfie
It is an over 50's tour group and I rang them and told them about Dad's condition as my Mum had not even mentioned it when she booked him in ( I swear she's in denial). They were very grateful to have the heads up and I gave them my contact details in case of any issues. I have given him dot point, step by step instructions and booked his taxi for him, I went through his phone and updated his contacts information and filled out his medical ID with all of his medications, current doses etc. He can sort them into their little boxes but if you ask him out of context what he takes, he can't tell you.

Sigh... His plane should be landing in Darwin in about five minutes so I will send him a text message to ask if he had a good flight (and check that he got there ok!).

Have you had experience with Dementia /Alzheimer's in a loved one?
Do you get holiday-lag when you come home to reality?